2011年11月16日
The Toll of Brain Cancer and Treatment: A Caregiver Grieves Losses
BY Robert E. Lee
照顾所爱的人有严重的疾病be exhausting and disheartening. Robert Lee of Oolitic, Ind., shares the story of his wife's 2009 diagnosis of胶质母细胞瘤,而且都跟着身体,认知和情感损失。
I never wanted to get married. A happy, 40-year-old bachelor, I didn't need the added stress.
I was already stressed out doing two jobs: an environmental compliance inspector and a major in the Army Reserve.
Then I moved to an apartment located next to a Wendy's restaurant.
这就是我遇到了乔。其实,我看和从远处欣赏她一会儿。她是我见过最难的工人。
Every day, I saw her little red truck parked at the side of the restaurant. I watched her carry out the trash every morning, even if it was rainy, snowy or icy.
只见她从桶中的隔油池重达她下来进行润滑脂,她那漂亮的头发乱蓬蓬的雪和冰。
最后,三年后,我问她约会。她接受了。我们约会。我问她嫁给我。她接受了,我们从此幸福地生活......直到2009年8月26日,。
Emergency surgery and a diagnosis
She came home from work with a headache. The next day, I found her unconscious on the living room floor. I took her to the emergency room, and after emergency surgery and a diagnosis of glioblastoma multiforme, we came to MD Anderson.
We were fortunate to get Vinay Puduvalli, M.D., as Jo's neuro-oncologist. He advised that Jo have further surgery, which was done by another great doctor,Sujit Prabhu, M.D.
Dr. Prabhu successfully removed Jo's tumor and the entire left frontal lobe of her brain.
手术后,我们就回家了印第安纳其中乔接受放射治疗14周。我松了一口气,手术已经如此成功和乔正在处理她的治疗这么好。
但在2011年1月6日,她最后一次放射治疗一年后,一个东西叫“放射性坏死”把我们的世界颠倒。
On Jan. 4, she and I went out to dinner. We talked and laughed, then went to the library.
On Jan. 6, she couldn't walk, talk or sit up and had lost all control of her bodily functions.
In our local emergency room, I called Natalie Puhls, Dr. Puduvalli's nurse at MD Anderson. She conferred with Dr. Puduvalli, who immediately prescribed a cycle ofAvastin®infusions to be done at our local hospital.
该药物创造了奇迹在得到她的脚,并在她的胳膊和腿的控制乔回来了,但她的认知能力损害是深刻而阿瓦斯汀做一点帮助它。
近一年来它一直以来放射性坏死的恐怖抢走我崇拜的妻子。
乔和我吵架,每天回去,她已经失去了认知和抢走了我的知心伴侣的。我们走的每一天。我们算在一起,我们走。我们轮流计数到30.我问她我们的婚礼和度蜜月。我问她谁促使我们从机场到旋转大厦酒店在MD安德森and what comes after 33. I just keep asking her questions and engaging her to keep her with me and to keep her fighting for her memory.
它伤害,当你爱的人,因为疾病,失去了在她用爱的爱好全部利息。
韦勒陶器她这么精心收集围坐尘封。她往往如此钟爱这个花园已经变成了杂草。我想念她打断我的话经常当我试着看我的新闻节目。
That doesn't happen anymore. And it hurts.